Hi all,
yes that is a great discussion.
What I see in the video are constantly activated growth factors (i.e. tissue-plus, proliferation) in the face of the boy. It seems that what is growing is rather ((Integumentary - Skin Overview|skin)) and subcutaneous tissue than ((Musculoskeletal - Bones|bone)). It seems to have started on the left side according to photos in the video.
As a genetic condition, the original trauma or damage happened before birth, it may have been a physical or psychological trauma to the mother during the time the respective genetic blueprint was built. From the looks, we'd hypothesize that a ((Integumentary - Skin - Dermis (Leather Skin)|defilement)) trauma happened and that the conflict (and plus-reaction) is constanty active. Sure, when kids call him a monster, or when he sees himself looking very different, this would trigger the conflict over and over again. Even KCT can be involved depending on the degree of swelling (not proliferation) in the tissue.
Working with the mother and with him would aim at letting them feel protected and loved, in order to end the conflict and thereby epigenetically stop further proliferation, and imprinting the healed blueprint for his face to give the cells the direction in which to work.
It's important to deal with emotions of guilt, shame and anger in the family because they make the issue stickier. There might be factors involved that this condition makes sense in their history, like a big underlying fear that is acted out and thereby released?.
The superior goal is for him to have life quality.
That video really wrenched my heart...